Hello everyone!
Wanted to let you all know that we have rescheduled Kinsley's surgery for May 5th. The doctors agreed that an MRI was necessary but could not get it scheduled for the same date. (to ensure only one time under anesthesia) So we shall wait to perform both procedures on May 5th.
Other than that, all is well with The Hase Posse! Kinsley officially turned 7 months on Wednesday. She celebrated a bit too hard at daycare and was asleep by 6PM! She is a rolling machine and loves to roll around the living room. She has even taken to rolling in her crib and sleeping in different positions. Needless to say, the entertainment continues!
The Kinster
Thursday, March 24, 2011
Sunday, March 20, 2011
One down, one to go
Tad's results came back on Friday and we are very happy to announce that no new growth was detected! With him in the clear, all we need now is the same news with Kinsley. While at the Mayo Clinic we received a call from her Dermatologist. She had been at a convention and brought Kinsley's case to one of the leading pigmented skin specialists. She made recommendations and suggestions for our dermatologist. It was simply amazing to get this call from a gal that we saw ONCE. Dr. Finnegan has already proven that she wants to join the fight and we could not be more thrilled. We still await the order for the MRI from our pediatrician and hopefully we have a date set soon. In the meantime, we are going to get out and enjoy this spring weather as a family! Talk to you all soon!
Thursday, March 17, 2011
If it's not one MRI, it's another!
Greetings from Mayo Clinic.
Tad and I are up here for his yearly visit to Dr. Lagerlund. Mayo has been great to us the last couple of visits so we are praying for much of the same. Kinsley stayed at home with Grandma Kris because something tells me an active baby and hours of waiting room sittin', don't mix. We were so sad to leave her for the first time since having her but know that she is getting lots of snuggles. Coming here together has reminded us of the freedoms that we were so familiar with before Kinsley. Bittersweet if you ask me. It was sure nice to brush my teeth with two free hands this morning but man, I miss her already. So often I hear people talking about how they are "running to the store real quick" or "popping in for a quick drink" and I think to myself about how those days are gone. For a moment I envy their freedoms, but that is just it, it only lasts a moment. Truth be told I would rather be with her any given moment and am happy to have sacrificed my freedoms for her giggles, cuddles, and even her toots in church!
Well, Tad is almost done with his first test so I better gear up for the next waiting room! Thanks for following along and wish us lots o' luck on this St. Patty's Day!
Tad and I are up here for his yearly visit to Dr. Lagerlund. Mayo has been great to us the last couple of visits so we are praying for much of the same. Kinsley stayed at home with Grandma Kris because something tells me an active baby and hours of waiting room sittin', don't mix. We were so sad to leave her for the first time since having her but know that she is getting lots of snuggles. Coming here together has reminded us of the freedoms that we were so familiar with before Kinsley. Bittersweet if you ask me. It was sure nice to brush my teeth with two free hands this morning but man, I miss her already. So often I hear people talking about how they are "running to the store real quick" or "popping in for a quick drink" and I think to myself about how those days are gone. For a moment I envy their freedoms, but that is just it, it only lasts a moment. Truth be told I would rather be with her any given moment and am happy to have sacrificed my freedoms for her giggles, cuddles, and even her toots in church!
Well, Tad is almost done with his first test so I better gear up for the next waiting room! Thanks for following along and wish us lots o' luck on this St. Patty's Day!
Tuesday, March 15, 2011
Amazement #456563
She always amazes me! Kinsley and I have been battling colds the last few days. It has been hard watching her struggle to breath right and it is even harder knowing I gave her the stupid cold!! But she is such a trooper, most times during the day you would hardly know she had a fever or a cold! She plays right on through the snot, sneezes, and cough. Makes me think this is all a ploy to get more solid foods and not so much boring BM from a bottle!! Chunkers ate cereal, green beans, sweet potatoes, and peaches today! My mom told me today that she was going to turn orange if I didn't give her some greens! Kins wasn't a huge fan but of course ate them anyway.
Kari, at Dr. Miller's office has called to let us know that Kinsley's next surgery will take place April 14th at 9:15AM. This calls means two things 1) insurance has approved the procedure once again (YAY!) and 2) we will be one step closer to removing the large nevus completely. People told us the surgeries would get easier as we go and I suppose they think this because we know what to expect but it's so not true (so please stop telling us this). Picking up your baby from the recovery room is never easy. We just pray that we get control of her pain early on, rather than waiting like they did on the first one.
We are still waiting on word from our pediatrician about scheduling the MRI. I have resisted the urge to call for a few days now. I Suppose it is time that to let Jesus take the wheel, at least that is what Carrie Underwood would tell me. Well, I must log off my blog and do some homework. Lord knows that isn't going to get done itself.
I will write again when I hear back from her pediatrician. Hope everyone is having a lovely week. If Kinsley is feeling better tomorrow, Tad and I will head up to Mayo for his yearly exam!!
Kari, at Dr. Miller's office has called to let us know that Kinsley's next surgery will take place April 14th at 9:15AM. This calls means two things 1) insurance has approved the procedure once again (YAY!) and 2) we will be one step closer to removing the large nevus completely. People told us the surgeries would get easier as we go and I suppose they think this because we know what to expect but it's so not true (so please stop telling us this). Picking up your baby from the recovery room is never easy. We just pray that we get control of her pain early on, rather than waiting like they did on the first one.
We are still waiting on word from our pediatrician about scheduling the MRI. I have resisted the urge to call for a few days now. I Suppose it is time that to let Jesus take the wheel, at least that is what Carrie Underwood would tell me. Well, I must log off my blog and do some homework. Lord knows that isn't going to get done itself.
I will write again when I hear back from her pediatrician. Hope everyone is having a lovely week. If Kinsley is feeling better tomorrow, Tad and I will head up to Mayo for his yearly exam!!
Friday, March 11, 2011
Because I need to.
I have gone back and forth for a few weeks, battling my urge to start this blog. I am not doing this because I am bored. Lord knows you cannot be bored with a 6-month old on your hands. And I am definitely not doing it for sympathy. I am doing this for me and for the betterment of my family. I need to tell people our story. This story will be filled with joy, perseverance, and maybe a few (very few) moments of sadness. I have decided to create this blog as a coping mechanism for me and also a way to keep all of my friends and family in tune with what is going on with...THE HASE POSSE.
Many of you know our story and some of you may not. I will lead you through our battle with this stupid nevus and continually update you on how our baby girl continues to surpass our expectations. She is not terminally ill and she is in no way held down by what God has given her. She was born with a giant hairy nevus (do not Google this, promise?) and two small satellites. There is no known cause for this birthmark. I am sure that it happens for a reason and this reason is something that I am bound and determined to find out. God has blessed us with this girl, giant hairy nevus and all, and we cherish every second with her.
Kinsley is almost 7 months old and is awaiting her second of three surgeries to remove her nevus. She has been blessed with wonderful skin and we have yet to need expanders. She will undergo an MRI in the very near future to see if there are additional lesions in her brain or spinal cord. God willing, she will be clear and from there will continue to monitor her brain and spinal cord. She bounced back faster than her mama from the first surgery and we can only pray that the second and third go as well. We have an amazing, and I mean AMAZING, pediatrician who has worked day and night to make sure she is in the best of hands.
I hope that you all tag along with us as we conquer this stupid nevus. I say it is stupid because at this time in the fight, I can't quite figure it all out. I am going to honest and real on every post so I am sorry if I offend anyone. I owe it to my family (and myself) to be upfront with this and you can expect nothing less. Welcome aboard folks, The Hase Posse is about to kick some nevus butt.
Many of you know our story and some of you may not. I will lead you through our battle with this stupid nevus and continually update you on how our baby girl continues to surpass our expectations. She is not terminally ill and she is in no way held down by what God has given her. She was born with a giant hairy nevus (do not Google this, promise?) and two small satellites. There is no known cause for this birthmark. I am sure that it happens for a reason and this reason is something that I am bound and determined to find out. God has blessed us with this girl, giant hairy nevus and all, and we cherish every second with her.
Kinsley is almost 7 months old and is awaiting her second of three surgeries to remove her nevus. She has been blessed with wonderful skin and we have yet to need expanders. She will undergo an MRI in the very near future to see if there are additional lesions in her brain or spinal cord. God willing, she will be clear and from there will continue to monitor her brain and spinal cord. She bounced back faster than her mama from the first surgery and we can only pray that the second and third go as well. We have an amazing, and I mean AMAZING, pediatrician who has worked day and night to make sure she is in the best of hands.
I hope that you all tag along with us as we conquer this stupid nevus. I say it is stupid because at this time in the fight, I can't quite figure it all out. I am going to honest and real on every post so I am sorry if I offend anyone. I owe it to my family (and myself) to be upfront with this and you can expect nothing less. Welcome aboard folks, The Hase Posse is about to kick some nevus butt.
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